I started chemo

I forgot to write an update 1.5 weeks ago when i started chemo. It really wasn’t that i forgot…..i got the chemo and then felt like i had been hit by a bus. Then 6 days later i felt better and went back to work and now, 10 days after i started it, i’m finally updating my blog. Such is life.

I am currently doing 6 months (8 rounds) of CAPEOX. That is Capecitabine (oral chemo) and Oxaliplatin (iv chemo). The IV chemo is an infusion at Hollings Cancer Center once every three weeks and then the oral chemo is something i take for 14 days, twice a day. Then i don’t take the oral chemo for days 15-21. And then the cycle starts all over again. I’m ALMOST done with my first round of the oral chemo (three more days), so i’m hoping the 7 days of no chemo at all will be GLORIOUS!

The oral chemo is the same one that i was on during radiation. It makes me nauseated. It can cause hand/foot sores (i’m trying to keep them moisturized and work out a lot to keep the blood flow going to them). I did ok on it the last time…..this time, it is just a lot longer time being on the medicine, so i hope the side effects are minimal. The IV chemo is a beast. Side effects are cold sensitivities (like not being able to drink anything but room temp liquids and requiring gloves when going into the fridge) and neuropathy (tingling in hands/feet). To combat both side effects, i am doing “icing” of my mouth, and hands and feet. I ate ice during my infusion and put cold packs in my socks and held a cold pack in my hands. I think it worked pretty well for the first infusion (although it scared my chemo nurse a little bit) and in the days after chemo i was able to eat icecream and i did not have any cold issues with my hands or feet. There is a journal article that came out this year (Journal of National Comprehensive Cancer Network, April 2019) that shows cancer patients who kept ice chips in their mouth during their oxaliplatin infusion reported that they subsequently developed less cold sensitivity in their mouths and could eat and drink with less discomfort compared to patients who did not keep ice in their mouth. I thought it was worth a try and i’m going to continue to do it as long as i can. 🙂

The IV chemo really kicked my butt. For the first few days, i spent most of the day sleeping. Slowly but surely i started feeling better after a couple of days and as i’m writing this, i’m feeling decent. Not 100% (not sure i will ever feel that way while doing this 6 months of hell) but good enough to work out and eat what i can and feel like a normal person. I’ll take it.

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